Mixed Connective Tissue Disease Awarenes
Hello and welcome to the MCTDA forum!
This is a forum for MCTD sufferers, the first of its kind! (to my knowledge).
To be part of our community please click on the register button below.
If you are already a member please login.
For more information on Mixed Connective Tissue Disease, check out the website:
www.mctdaware.co.uk
Please note: this is the first time I have created a forum so if there are any bugs please report them asap so I can fix them. Contact me via email:
mctda@hotmail.co.uk
I hope you find the help, support and information you need and I wish you to be happy and flare free :-)
Abigail -
Creator of MCTDA
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New to Group

Thu May 21, 2015 12:12 pm by leeG

HI All, thanks for letting me join, i was diagnosed two yrs ago, altho had symptoms for much longer and now wonder if the MCTD started in my 30s when i was diagnosed with chronic fatigue. now also have raynauds, hashimoto's, blepharitis (sp?), asthma, and multiple allergies, Plaquinel has amazing effects until i had a severe reaction, and now on Atabrine (quinacrine) but its not as effective. …

Comments: 0

New to group, New to disease

Tue Aug 26, 2014 5:58 am by MissDaisy

Hello,
I am a 36 year old female with 3 boys, ages 4-9, and I work as a 911 Dispatcher. I started having symptoms about 3 years ago starting with lumbar pain. I put it off for well over a year thinking it was just over-exertion. When I couldnt take the pain anymore as it was constant, and even just turning my head to the side caused severe pain. I got to the point that standing, sitting, and …

Comments: 1

How much pain before accepting medication?

Fri Sep 19, 2014 9:46 pm by josephine landau

Hi - My names Jo, I'm 42.
I was diagnosed in January of this year with MCTD, after a year or so of growing symptoms (Reynaulds, aching joints etc) I am a working mum with 2 boys, so my days are fairly hectic.
I take B12 injections for fatigue, Levothyroxine for low thyroid and Tegretol for an epileptic seizure I had 10 years ago -So I was reluctant to add to my drugs list and I declined any …

Comments: 0

Not yet diagnosed teen from Finland

Thu Mar 27, 2014 6:12 am by finnishgirl

Hi everyone!

I was happily suprised when I found all this great stuff for us MCTD patients! And hope to get to know some people with this illness. Because there's not a lot of stuff for us in Finland.

I'm a 15-years-old girl from Finland. I still haven't got a diagnosis for MCTD, but my rheuma specialist has suggested it after many years of different tests. And it seems to be logical, I have …

Comments: 0

Another Australian story

Fri Nov 29, 2013 9:50 am by Ozzie1954

First of all, it is so good to find a forum with people who have been going through the same issues. I was doing a search on earache/jaw pain which is afflicting me this morning and found this forum.

My story begins in 1987 but probably goes back a lot further because of other issues that surfaced in my teens. It started after I had a bout of the flu, went back to work where I was handling …

Comments: 1

New from California.

Fri Jul 26, 2013 10:28 pm by mollyingrid92

Hello! My name is Molly, 20 years old, California resident. At the beginning of the 2013 year I noticed I was having really bad knee pains that would last for a while. When I finally went to see my doctor, he moved my leg around to see how my knee was working. Then he did this weird on where he would put a hand flat on the side of my knee and with the other hand push on the opposite side of my …

Comments: 8

This is all new!

Thu Apr 18, 2013 2:35 am by Admin

Ive never run or created a forum before so there may be some bugs, please let me know as soon as possible so I can correct them! I hope you find it easy to use!
Admin Very Happy

Comments: 9

Hi from Australia

Tue Apr 30, 2013 12:46 pm by gorillagirl

Hi everyone Very Happy

A brief bio. Female, 45, Hashimoto's since young. Started with flare ups after activity, sore joints and muscles, feeling sick, bloods abnormal and high CRP and ESR, symptoms pointed to lupus. Doctor nightmare for some years, the usual, it's just your thyroid and you have fibro, maybe you have narcolepsy, others haven things worse than you blah blah blah.

Found a good GP, …

Comments: 8

Newbie, new to the dx, but not to the symptoms

Tue Apr 30, 2013 2:20 pm by Lenorekitty75

Hello Everyone ! Smile

Just came across this site today. Which is odd because I've been googling MCTD for months now. It's nice to know there are others out there in the world who could relate to what has become my life. Although I have frequented lupus and MS boards over the last 9 yrs and had wonderful support.

I am Christina, 37...mum of 3 the youngest is 3 and the oldest is 14. The Dr's have …

Comments: 4

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Latest topics
» New to Group
Thu May 21, 2015 12:12 pm by leeG

» Flare up PLEASE help!
Sat Feb 21, 2015 1:48 pm by aceequine7

» Help with getting a doctor to understand...
Fri Oct 31, 2014 6:16 am by nancehg

» Pain management/plaquenil vision issues
Fri Oct 31, 2014 5:49 am by nancehg

» New to group, New to disease
Fri Oct 31, 2014 5:37 am by nancehg

» Ear ache/Jaw pain - Anyone else?
Sat Oct 11, 2014 8:39 pm by finnishgirl

» How much pain before accepting medication?
Fri Sep 19, 2014 9:46 pm by josephine landau

» Burning sensation and peeling of skin on hands and feet
Fri Jun 13, 2014 4:41 am by Andazi

» Heartburn & reflux
Sun May 25, 2014 8:49 pm by finnishgirl

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Jon of God - healing - A Big Help to Me - Something you all might like to try!

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Jon of God - healing - A Big Help to Me - Something you all might like to try!

Post by kcarud on Tue Apr 23, 2013 1:34 am

Hi There,

I've just wanted to let you all in on a little something that has worked greatly for me over the past 3 - 4 months.

Have any of you heard of John of God in Brazil??

Well this man was mentioned to me just before Christmas and I done some researching on him.

A friend of mind actually travelled to him a few years back as he was unable to walk due to a back injury. This friend is now walking and fully active.

So I found out that I could actually take a picture of myself and have it sent to John of God and the picture would be presented to him for blessings.
Once this is done, John of God energised herbs called "Passiflora" specifically for my needs. It costs about €54 for the prescription.

Anyway when I received them I had to change my diet a little while taking them, no spicy foods is the big thing.

I can honestly say that I did not have 1 flare up while taking the herbs, I was so full of energy and life. And completely pain free.
I finished taking them 2 weeks ago and just this weekend some pains have returned to my hands and upper arms. I sent in a new photo just last Thursday to be re-presented so I am now awaiting more herbs to come in the post.

If anybody is interested in trying this out for themselves here is the link and info on what you need to do.

John of god - healing website

I would be interested to know if any of you guys have or will try this.

I just wanted to let you know of something that is most definitely working for me Smile

Karen xxx


Last edited by Admin on Thu Apr 25, 2013 12:53 am; edited 2 times in total (Reason for editing : Adding in website link & proper title in subject line for easiness of searching for topics)
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Re: Jon of God - healing - A Big Help to Me - Something you all might like to try!

Post by Admin on Wed Apr 24, 2013 11:15 pm

Hi kcarud,
I have repinned this topic to alternative therapies. I have also edited your page & posted the link in there for you Smile
It looks really interesting! I shall search on this later & post the link on the Facebook page Very Happy Do you know if you can get the herbs elsewhere?

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Re: Jon of God - healing - A Big Help to Me - Something you all might like to try!

Post by kcarud on Fri Apr 26, 2013 12:15 am

Hi,

It's defo worth trying, it has worked so well for me.
I'm sure you can get ordinary passiflora herbs, but John of God is a healer so he energises them specifically for your needs.

It gives the full explanation on his website. You all should have a look on YouTube also.
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Re: Jon of God - healing - A Big Help to Me - Something you all might like to try!

Post by Admin on Sat May 04, 2013 2:24 am

Thank you I will do. I am interested in trying anything that helps Surprised

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