Mixed Connective Tissue Disease Awarenes
Hello and welcome to the MCTDA forum!
This is a forum for MCTD sufferers, the first of its kind! (to my knowledge).
To be part of our community please click on the register button below.
If you are already a member please login.
For more information on Mixed Connective Tissue Disease, check out the website:
www.mctdaware.co.uk
Please note: this is the first time I have created a forum so if there are any bugs please report them asap so I can fix them. Contact me via email:
mctda@hotmail.co.uk
I hope you find the help, support and information you need and I wish you to be happy and flare free :-)
Abigail -
Creator of MCTDA
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New to Group

Thu May 21, 2015 12:12 pm by leeG

HI All, thanks for letting me join, i was diagnosed two yrs ago, altho had symptoms for much longer and now wonder if the MCTD started in my 30s when i was diagnosed with chronic fatigue. now also have raynauds, hashimoto's, blepharitis (sp?), asthma, and multiple allergies, Plaquinel has amazing effects until i had a severe reaction, and now on Atabrine (quinacrine) but its not as effective. …

Comments: 0

New to group, New to disease

Tue Aug 26, 2014 5:58 am by MissDaisy

Hello,
I am a 36 year old female with 3 boys, ages 4-9, and I work as a 911 Dispatcher. I started having symptoms about 3 years ago starting with lumbar pain. I put it off for well over a year thinking it was just over-exertion. When I couldnt take the pain anymore as it was constant, and even just turning my head to the side caused severe pain. I got to the point that standing, sitting, and …

Comments: 1

How much pain before accepting medication?

Fri Sep 19, 2014 9:46 pm by josephine landau

Hi - My names Jo, I'm 42.
I was diagnosed in January of this year with MCTD, after a year or so of growing symptoms (Reynaulds, aching joints etc) I am a working mum with 2 boys, so my days are fairly hectic.
I take B12 injections for fatigue, Levothyroxine for low thyroid and Tegretol for an epileptic seizure I had 10 years ago -So I was reluctant to add to my drugs list and I declined any …

Comments: 0

Not yet diagnosed teen from Finland

Thu Mar 27, 2014 6:12 am by finnishgirl

Hi everyone!

I was happily suprised when I found all this great stuff for us MCTD patients! And hope to get to know some people with this illness. Because there's not a lot of stuff for us in Finland.

I'm a 15-years-old girl from Finland. I still haven't got a diagnosis for MCTD, but my rheuma specialist has suggested it after many years of different tests. And it seems to be logical, I have …

Comments: 0

Another Australian story

Fri Nov 29, 2013 9:50 am by Ozzie1954

First of all, it is so good to find a forum with people who have been going through the same issues. I was doing a search on earache/jaw pain which is afflicting me this morning and found this forum.

My story begins in 1987 but probably goes back a lot further because of other issues that surfaced in my teens. It started after I had a bout of the flu, went back to work where I was handling …

Comments: 1

New from California.

Fri Jul 26, 2013 10:28 pm by mollyingrid92

Hello! My name is Molly, 20 years old, California resident. At the beginning of the 2013 year I noticed I was having really bad knee pains that would last for a while. When I finally went to see my doctor, he moved my leg around to see how my knee was working. Then he did this weird on where he would put a hand flat on the side of my knee and with the other hand push on the opposite side of my …

Comments: 8

This is all new!

Thu Apr 18, 2013 2:35 am by Admin

Ive never run or created a forum before so there may be some bugs, please let me know as soon as possible so I can correct them! I hope you find it easy to use!
Admin Very Happy

Comments: 9

Hi from Australia

Tue Apr 30, 2013 12:46 pm by gorillagirl

Hi everyone Very Happy

A brief bio. Female, 45, Hashimoto's since young. Started with flare ups after activity, sore joints and muscles, feeling sick, bloods abnormal and high CRP and ESR, symptoms pointed to lupus. Doctor nightmare for some years, the usual, it's just your thyroid and you have fibro, maybe you have narcolepsy, others haven things worse than you blah blah blah.

Found a good GP, …

Comments: 8

Newbie, new to the dx, but not to the symptoms

Tue Apr 30, 2013 2:20 pm by Lenorekitty75

Hello Everyone ! Smile

Just came across this site today. Which is odd because I've been googling MCTD for months now. It's nice to know there are others out there in the world who could relate to what has become my life. Although I have frequented lupus and MS boards over the last 9 yrs and had wonderful support.

I am Christina, 37...mum of 3 the youngest is 3 and the oldest is 14. The Dr's have …

Comments: 4

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Latest topics
» New to Group
Thu May 21, 2015 12:12 pm by leeG

» Flare up PLEASE help!
Sat Feb 21, 2015 1:48 pm by aceequine7

» Help with getting a doctor to understand...
Fri Oct 31, 2014 6:16 am by nancehg

» Pain management/plaquenil vision issues
Fri Oct 31, 2014 5:49 am by nancehg

» New to group, New to disease
Fri Oct 31, 2014 5:37 am by nancehg

» Ear ache/Jaw pain - Anyone else?
Sat Oct 11, 2014 8:39 pm by finnishgirl

» How much pain before accepting medication?
Fri Sep 19, 2014 9:46 pm by josephine landau

» Burning sensation and peeling of skin on hands and feet
Fri Jun 13, 2014 4:41 am by Andazi

» Heartburn & reflux
Sun May 25, 2014 8:49 pm by finnishgirl

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Hi from Australia

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Hi from Australia

Post by gorillagirl on Tue Apr 30, 2013 12:46 pm

Hi everyone Very Happy

A brief bio. Female, 45, Hashimoto's since young. Started with flare ups after activity, sore joints and muscles, feeling sick, bloods abnormal and high CRP and ESR, symptoms pointed to lupus. Doctor nightmare for some years, the usual, it's just your thyroid and you have fibro, maybe you have narcolepsy, others haven things worse than you blah blah blah.

Found a good GP, offered prednisone to get me through for a bit and it was a Godsend, he was sure it was a connective tissue disorder, and I ended up on disability, officially mixed connective tissue disorder. Moved house, found a new rheumie at the city hospital now slightly closer, MCTD with lupus features.

Had a new round of bloods to see if any antibodies will show up (had been off pred for about 6 weeks) and see him again on the 7th. No antibodies had shown up on a few previous tests with another doctor so that was a problem with diagnosis as well. Expecting CRP and ESR to be high though.

Looking forward to chatting with others and sharing information.

Jo

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Re: Hi from Australia

Post by kimmieg33 on Thu May 02, 2013 2:53 am

Hello flower
I'm turning 45 in august and got my diagnosis a year ago. Sure did explain a lot of things. They always treated me for depression so I thought I must be crazy. I went to my primary doc and had made a very long list of all the different symptoms that were plaguing me. That began my journey of a thousand docs lol!
Glad your here sunny
Kim

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Albert Camus~
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Re: Hi from Australia

Post by Admin on Sat May 04, 2013 12:29 am

Hi Jo welcome to the forum flower

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Re: Hi from Australia

Post by gorillagirl on Sat May 04, 2013 11:29 am

Thanks guys cheers

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Re: Hi from Australia

Post by Laney84 on Sat May 04, 2013 8:18 pm

hi jo,
where in australia are you from? i lived and worked there in 2006/7 i loved it such a lovely country and the people are great. hope you can get some good meds to get you sorted soon
laney

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Re: Hi from Australia

Post by kimmieg33 on Sun May 05, 2013 1:00 am

Hello Jo sunny

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Albert Camus~
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Re: Hi from Australia

Post by gorillagirl on Sun May 05, 2013 1:12 pm

I'm currently in Adelaide but heading back to QLD in a few months. I'm getting a caravan ready to live in for a little while so I have stable accommodation for me and my dogs. One thing many don't know is that we do have Lyme in Australia and once I get up there I'll be sorting out a Lyme literate doctor for testing. We have to send our blood to the US to be tested because the tests used here don't pick it up. Lyme here can be transmitted by vectors other than ticks as well, but I've had tick bites and one with a rash. Lyme can present as a lot of different AI diseases so people die from it because they aren't treated correctly.

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Re: Hi from Australia

Post by Ozzie1954 on Fri Nov 29, 2013 9:13 am

gorillagirl wrote:Hi everyone  Very Happy

A brief bio. Female, 45, Hashimoto's since young. Started with flare ups after activity, sore joints and muscles, feeling sick, bloods abnormal and high CRP and ESR, symptoms pointed to lupus. Doctor nightmare for some years, the usual, it's just your thyroid and you have fibro, maybe you have narcolepsy, others haven things worse than you blah blah blah.

Found a good GP, offered prednisone to get me through for a bit and it was a Godsend, he was sure it was a connective tissue disorder, and I ended up on disability, officially mixed connective tissue disorder. Moved house, found a new rheumie at the city hospital now slightly closer, MCTD with lupus features.

Had a new round of bloods to see if any antibodies will show up (had been off pred for about 6 weeks) and see him again on the 7th. No antibodies had shown up on a few previous tests with another doctor so that was a problem with diagnosis as well. Expecting CRP and ESR to be high though.

Looking forward to chatting with others and sharing information.

Jo
I am also from Australia and I detest those doctors who claim that it is just fibro.

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Re: Hi from Australia

Post by Ozzie1954 on Fri Nov 29, 2013 9:18 am

I am also from Australia, and currently living on the NSW Central Coast.

My journey started in 1987 and it took until 2008 before I found a rheumy who diagnosed my problem as MCTD where I could either head towards Lupus or RA.

My whole saga is simply too long, but I did spend the best part of 12 months fuming about the doctor I saw in Gosford. What I called him to my doctor should not be repeated in a forum.... he sent me to another doctor and now I am once again diagnosed with RA.


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Re: Hi from Australia

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