Mixed Connective Tissue Disease Awarenes
Hello and welcome to the MCTDA forum!
This is a forum for MCTD sufferers, the first of its kind! (to my knowledge).
To be part of our community please click on the register button below.
If you are already a member please login.
For more information on Mixed Connective Tissue Disease, check out the website:
www.mctdaware.co.uk
Please note: this is the first time I have created a forum so if there are any bugs please report them asap so I can fix them. Contact me via email:
mctda@hotmail.co.uk
I hope you find the help, support and information you need and I wish you to be happy and flare free :-)
Abigail -
Creator of MCTDA
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New to Group

Thu May 21, 2015 12:12 pm by leeG

HI All, thanks for letting me join, i was diagnosed two yrs ago, altho had symptoms for much longer and now wonder if the MCTD started in my 30s when i was diagnosed with chronic fatigue. now also have raynauds, hashimoto's, blepharitis (sp?), asthma, and multiple allergies, Plaquinel has amazing effects until i had a severe reaction, and now on Atabrine (quinacrine) but its not as effective. …

Comments: 0

New to group, New to disease

Tue Aug 26, 2014 5:58 am by MissDaisy

Hello,
I am a 36 year old female with 3 boys, ages 4-9, and I work as a 911 Dispatcher. I started having symptoms about 3 years ago starting with lumbar pain. I put it off for well over a year thinking it was just over-exertion. When I couldnt take the pain anymore as it was constant, and even just turning my head to the side caused severe pain. I got to the point that standing, sitting, and …

Comments: 1

How much pain before accepting medication?

Fri Sep 19, 2014 9:46 pm by josephine landau

Hi - My names Jo, I'm 42.
I was diagnosed in January of this year with MCTD, after a year or so of growing symptoms (Reynaulds, aching joints etc) I am a working mum with 2 boys, so my days are fairly hectic.
I take B12 injections for fatigue, Levothyroxine for low thyroid and Tegretol for an epileptic seizure I had 10 years ago -So I was reluctant to add to my drugs list and I declined any …

Comments: 0

Not yet diagnosed teen from Finland

Thu Mar 27, 2014 6:12 am by finnishgirl

Hi everyone!

I was happily suprised when I found all this great stuff for us MCTD patients! And hope to get to know some people with this illness. Because there's not a lot of stuff for us in Finland.

I'm a 15-years-old girl from Finland. I still haven't got a diagnosis for MCTD, but my rheuma specialist has suggested it after many years of different tests. And it seems to be logical, I have …

Comments: 0

Another Australian story

Fri Nov 29, 2013 9:50 am by Ozzie1954

First of all, it is so good to find a forum with people who have been going through the same issues. I was doing a search on earache/jaw pain which is afflicting me this morning and found this forum.

My story begins in 1987 but probably goes back a lot further because of other issues that surfaced in my teens. It started after I had a bout of the flu, went back to work where I was handling …

Comments: 1

New from California.

Fri Jul 26, 2013 10:28 pm by mollyingrid92

Hello! My name is Molly, 20 years old, California resident. At the beginning of the 2013 year I noticed I was having really bad knee pains that would last for a while. When I finally went to see my doctor, he moved my leg around to see how my knee was working. Then he did this weird on where he would put a hand flat on the side of my knee and with the other hand push on the opposite side of my …

Comments: 8

This is all new!

Thu Apr 18, 2013 2:35 am by Admin

Ive never run or created a forum before so there may be some bugs, please let me know as soon as possible so I can correct them! I hope you find it easy to use!
Admin Very Happy

Comments: 9

Hi from Australia

Tue Apr 30, 2013 12:46 pm by gorillagirl

Hi everyone Very Happy

A brief bio. Female, 45, Hashimoto's since young. Started with flare ups after activity, sore joints and muscles, feeling sick, bloods abnormal and high CRP and ESR, symptoms pointed to lupus. Doctor nightmare for some years, the usual, it's just your thyroid and you have fibro, maybe you have narcolepsy, others haven things worse than you blah blah blah.

Found a good GP, …

Comments: 8

Newbie, new to the dx, but not to the symptoms

Tue Apr 30, 2013 2:20 pm by Lenorekitty75

Hello Everyone ! Smile

Just came across this site today. Which is odd because I've been googling MCTD for months now. It's nice to know there are others out there in the world who could relate to what has become my life. Although I have frequented lupus and MS boards over the last 9 yrs and had wonderful support.

I am Christina, 37...mum of 3 the youngest is 3 and the oldest is 14. The Dr's have …

Comments: 4

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Latest topics
» New to Group
Thu May 21, 2015 12:12 pm by leeG

» Flare up PLEASE help!
Sat Feb 21, 2015 1:48 pm by aceequine7

» Help with getting a doctor to understand...
Fri Oct 31, 2014 6:16 am by nancehg

» Pain management/plaquenil vision issues
Fri Oct 31, 2014 5:49 am by nancehg

» New to group, New to disease
Fri Oct 31, 2014 5:37 am by nancehg

» Ear ache/Jaw pain - Anyone else?
Sat Oct 11, 2014 8:39 pm by finnishgirl

» How much pain before accepting medication?
Fri Sep 19, 2014 9:46 pm by josephine landau

» Burning sensation and peeling of skin on hands and feet
Fri Jun 13, 2014 4:41 am by Andazi

» Heartburn & reflux
Sun May 25, 2014 8:49 pm by finnishgirl

Gallery



Current date/time is Fri Nov 16, 2018 9:16 pm


  • Forum
    Topics
    Posts
    Last Posts
  • Welcome


    Here is were you can introduce yourself and tell us your story with MCTD.
    20 Topics
    76 Posts
    New to Group
    Thu May 21, 2015 12:12 pm
    leeG View latest post
  • Mixed Connective Tissue Disease


    Here you can ask questions or share information on MCTD. See the topics listed below.
    33 Topics
    135 Posts
    Flare up PLEASE ...
    Sat Feb 21, 2015 1:48 pm
    aceequine7 View latest post
  • Medication & Treatments


    Post questions or information on medication & treatments here.
    6 Topics
    16 Posts
    Pain management/...
    Fri Oct 31, 2014 5:49 am
    nancehg View latest post
  • Flare-ups


    Are you going through a bad flare-up? Or worried something isn't right? How do you deal with flare-ups? Share your questions, worries and advice here.
    7 Topics
    29 Posts
    Flare up PLEASE ...
    Sat Feb 21, 2015 1:48 pm
    aceequine7 View latest post
  • Doctors


    Want to scream at your doctor? Have an issue with your doctor? Want to say something nice about your doctor? Post here.
    3 Topics
    17 Posts
    Help with gettin...
    Fri Oct 31, 2014 6:16 am
    nancehg View latest post
  • Facts


    If you have any facts to share about MCTD, please post them here. *All facts are posted by members, MCTDA shall accept NO responsibility over the accuracy or sources of these facts.*
    2 Topics
    8 Posts
    Statistics
    Fri Dec 06, 2013 5:47 pm
    Ozzie1954 View latest post
  • Other illnesses/diseases


    Got a cold or tooth ache? Worried about something non-MCTD related? Post questions about other illness or diseases you have here.
    8 Topics
    33 Posts
    Polymyalgia rheu...
    Sat Mar 01, 2014 2:15 am
    saimonsteave View latest post
  • Symptoms which may be related to MCTD


    Here you can post questions obout symptoms or problems that you're not sure if it is MCTD or unrelated.
    6 Topics
    30 Posts
    Burning sensatio...
    Fri Jun 13, 2014 4:41 am
    Andazi View latest post
  • How do you describe MCTD to non-sufferers?


    Post up the way you describe, to others, what MCTD is & how it affects your life.
    1 Topics
    2 Posts
    Spoon Theary
    Sat May 04, 2013 2:00 am
    Admin View latest post
  • Diet & Lifestyle


    Here you can ask questions or post information on diet & lifestyle. See topics below.
    5 Topics
    16 Posts
    Herbal Remedies ...
    Mon Mar 10, 2014 11:39 pm
    jossfenjorg View latest post
  • Diet & Lifestyle


    Post any questions or information on diet here. This can be general health tips or can be related specifically with MCTD. Anything to do with food post it here!
    3 Topics
    11 Posts
    Exercising
    Sun Dec 01, 2013 8:13 pm
    Ozzie1954 View latest post
  • Alternative Therapies


    Have you found an amazing alternative treatment or product that helps relieve symptoms? Post about it here.
    2 Topics
    5 Posts
    Herbal Remedies ...
    Mon Mar 10, 2014 11:39 pm
    jossfenjorg View latest post
  • Working & Careers


    Write about how MCTD has affected your working life & your career.
    0 Topics
    0 Posts

  • MCTD & children


    Do you have MCTD & children or do you have children with MCTD. See the topics below.
    2 Topics
    11 Posts
    Intro- my child ...
    Fri Aug 30, 2013 12:30 pm
    RondaT View latest post
  • My child has MCTD


    Post your questions & worries on your child that has MCTD. Please remember to include their age!
    1 Topics
    6 Posts
    Intro- my child ...
    Fri Aug 30, 2013 12:30 pm
    RondaT View latest post
  • I have MCTD & children!


    Are you struggling to cope with your disease & your children? Talk to other parents who suffer with MCTD too & get the support needed.
    1 Topics
    5 Posts
    Mommy hood with ...
    Sat May 18, 2013 4:30 am
    Laurenthia View latest post
  • Support


    Going to stay in hospital is horrible even if it's only for one night. Here you can post about someone you know being in hospital or post about yourself being in hospital. We want to show our support to you & your loved ones.
    0 Topics
    0 Posts

  • I'm in hospital


    We're sorry you're in hospital! Post about it here so we can show our support.
    0 Topics
    0 Posts

  • I know someone who is in hospital


    Post your support for someone you love who is in hospital. They don't have to have MCTD to show your support either!
    0 Topics
    0 Posts

  • First time experience of a painful treatment or operation


    Post here if you're having a painful treatment or operation for the first time so we can show our support.
    0 Topics
    0 Posts

  • MCTDA


    Do you have an issue with the Mixed Connective Tissue disease Awareness website? Or the Facebook page? Or the forum? Post any questions you have here. Any constructive criticism or suggestions are more than welcome!
    6 Topics
    10 Posts
    Forum newsletter...
    Sat May 25, 2013 5:11 am
    kimmieg33 View latest post
  • Website


    Problems or suggestions for the website go here.
    1 Topics
    1 Posts
    Friends of MCTD ...
    Tue May 21, 2013 1:35 am
    Admin View latest post
  • MCTDA News/ MCTD Awareness


    Here are news updates from Mixed Connective Tissue Disease Aware!
    2 Topics
    3 Posts
    WAAD chat host!...
    Thu May 23, 2013 9:07 am
    Admin View latest post
  • Forum


    Can't work out how to use the forum? Post your questions here.
    2 Topics
    5 Posts
    Forum newsletter...
    Sat May 25, 2013 5:11 am
    kimmieg33 View latest post
  • Facebook


    Any issues with Facebook post here. *Please note: Facebook is NOT a private page, it never has been & never will be! Any posts on the privacy of Facebook will be removed as spam.*
    0 Topics
    0 Posts

  • T-shirts & Donations


    If you have any questions about donation or purchasing t-shirts, post here.
    1 Topics
    1 Posts
    making the forum...
    Tue May 21, 2013 1:30 am
    Admin View latest post
  • Anything but MCTD!


    Here you can talk about anything you like! Anything that is NOT to do with MCTD! :-)
    3 Topics
    26 Posts
    Name 5 game
    Wed Jun 05, 2013 10:32 pm
    Admin View latest post
  • Small Talk


    Exactly as the title suggests. Posts about small talk, getting to know you and other subjects.
    0 Topics
    0 Posts

  • Just for fun!


    A place to relax and unwind! Post up jokes, games or talk about funny stories. It's all good fun here :-)
    1 Topics
    11 Posts
    Name 5 game
    Wed Jun 05, 2013 10:32 pm
    Admin View latest post
  • Travel


    Talk about holidays, travelling, your favoruite place in the whole world or where you're from!
    2 Topics
    15 Posts
    Bula Vinaka from...
    Sat May 18, 2013 1:10 am
    Admin View latest post
  • Happy Holidays!


    Post your 'happy holidays' here; birthdays, valentines, christmas & new years etc.
    0 Topics
    0 Posts

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