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Thu May 21, 2015 12:12 pm by leeG
HI All, thanks for letting me join, i was diagnosed two yrs ago, altho had symptoms for much longer and now wonder if the MCTD started in my 30s when i was diagnosed with chronic fatigue. now also have raynauds, hashimoto's, blepharitis (sp?), asthma, and multiple allergies, Plaquinel has amazing effects until i had a severe reaction, and now on Atabrine (quinacrine) but its not as effective. …
Comments: 0
New to group, New to disease
Tue Aug 26, 2014 5:58 am by MissDaisy
Hello,
I am a 36 year old female with 3 boys, ages 4-9, and I work as a 911 Dispatcher. I started having symptoms about 3 years ago starting with lumbar pain. I put it off for well over a year thinking it was just over-exertion. When I couldnt take the pain anymore as it was constant, and even just turning my head to the side caused severe pain. I got to the point that standing, sitting, and …
I am a 36 year old female with 3 boys, ages 4-9, and I work as a 911 Dispatcher. I started having symptoms about 3 years ago starting with lumbar pain. I put it off for well over a year thinking it was just over-exertion. When I couldnt take the pain anymore as it was constant, and even just turning my head to the side caused severe pain. I got to the point that standing, sitting, and …
Comments: 1
How much pain before accepting medication?
Fri Sep 19, 2014 9:46 pm by josephine landau
Hi - My names Jo, I'm 42.
I was diagnosed in January of this year with MCTD, after a year or so of growing symptoms (Reynaulds, aching joints etc) I am a working mum with 2 boys, so my days are fairly hectic.
I take B12 injections for fatigue, Levothyroxine for low thyroid and Tegretol for an epileptic seizure I had 10 years ago -So I was reluctant to add to my drugs list and I declined any …
I was diagnosed in January of this year with MCTD, after a year or so of growing symptoms (Reynaulds, aching joints etc) I am a working mum with 2 boys, so my days are fairly hectic.
I take B12 injections for fatigue, Levothyroxine for low thyroid and Tegretol for an epileptic seizure I had 10 years ago -So I was reluctant to add to my drugs list and I declined any …
Comments: 0
Not yet diagnosed teen from Finland
Thu Mar 27, 2014 6:12 am by finnishgirl
Hi everyone!
I was happily suprised when I found all this great stuff for us MCTD patients! And hope to get to know some people with this illness. Because there's not a lot of stuff for us in Finland.
I'm a 15-years-old girl from Finland. I still haven't got a diagnosis for MCTD, but my rheuma specialist has suggested it after many years of different tests. And it seems to be logical, I have …
I was happily suprised when I found all this great stuff for us MCTD patients! And hope to get to know some people with this illness. Because there's not a lot of stuff for us in Finland.
I'm a 15-years-old girl from Finland. I still haven't got a diagnosis for MCTD, but my rheuma specialist has suggested it after many years of different tests. And it seems to be logical, I have …
Comments: 0
Another Australian story
Fri Nov 29, 2013 9:50 am by Ozzie1954
First of all, it is so good to find a forum with people who have been going through the same issues. I was doing a search on earache/jaw pain which is afflicting me this morning and found this forum.
My story begins in 1987 but probably goes back a lot further because of other issues that surfaced in my teens. It started after I had a bout of the flu, went back to work where I was handling …
My story begins in 1987 but probably goes back a lot further because of other issues that surfaced in my teens. It started after I had a bout of the flu, went back to work where I was handling …
Comments: 1
New from California.
Fri Jul 26, 2013 10:28 pm by mollyingrid92
Hello! My name is Molly, 20 years old, California resident. At the beginning of the 2013 year I noticed I was having really bad knee pains that would last for a while. When I finally went to see my doctor, he moved my leg around to see how my knee was working. Then he did this weird on where he would put a hand flat on the side of my knee and with the other hand push on the opposite side of my …
Comments: 8
This is all new!
Thu Apr 18, 2013 2:35 am by Admin
Ive never run or created a forum before so there may be some bugs, please let me know as soon as possible so I can correct them! I hope you find it easy to use!
Admin
Admin
Comments: 9
Hi from Australia
Tue Apr 30, 2013 12:46 pm by gorillagirl
Hi everyone
A brief bio. Female, 45, Hashimoto's since young. Started with flare ups after activity, sore joints and muscles, feeling sick, bloods abnormal and high CRP and ESR, symptoms pointed to lupus. Doctor nightmare for some years, the usual, it's just your thyroid and you have fibro, maybe you have narcolepsy, others haven things worse than you blah blah blah.
Found a good GP, …
A brief bio. Female, 45, Hashimoto's since young. Started with flare ups after activity, sore joints and muscles, feeling sick, bloods abnormal and high CRP and ESR, symptoms pointed to lupus. Doctor nightmare for some years, the usual, it's just your thyroid and you have fibro, maybe you have narcolepsy, others haven things worse than you blah blah blah.
Found a good GP, …
Comments: 8
Newbie, new to the dx, but not to the symptoms
Tue Apr 30, 2013 2:20 pm by Lenorekitty75
Hello Everyone ! 
Just came across this site today. Which is odd because I've been googling MCTD for months now. It's nice to know there are others out there in the world who could relate to what has become my life. Although I have frequented lupus and MS boards over the last 9 yrs and had wonderful support.
I am Christina, 37...mum of 3 the youngest is 3 and the oldest is 14. The Dr's have …
Just came across this site today. Which is odd because I've been googling MCTD for months now. It's nice to know there are others out there in the world who could relate to what has become my life. Although I have frequented lupus and MS boards over the last 9 yrs and had wonderful support.
I am Christina, 37...mum of 3 the youngest is 3 and the oldest is 14. The Dr's have …
Comments: 4
Latest topics
Where are people from?
4 posters
Page 1 of 1
Where are people from?
by Katkat Mon May 06, 2013 12:19 pm
Hi Abby, not sure if this is okay, so feel free to erase if you would prefer, but I was wondering if we could get a kind of list going, of whereabouts in the world people are from? I guess sometimes I feel really lonely, like I'm the only person around who has MCTD, so it might help everyone to not feel so alone and isolated, and could help with meds from the same country/specialists/support groups etc??
I'll start the list
Katkat- Adelaide, Australia
I'll start the list
Katkat- Adelaide, Australia
Katkat- Member
- Posts : 20
Join date : 2013-04-18
Age : 43
Location : Australia
gorillagirl- Member
- Posts : 13
Join date : 2013-04-30
Katkat- Member
- Posts : 20
Join date : 2013-04-18
Age : 43
Location : Australia
Re: Where are people from?
by gorillagirl Mon May 06, 2013 1:13 pm
We should probably catch up for coffee before I leave, I don't know anyone here who has the same crap I do 
gorillagirl- Member
- Posts : 13
Join date : 2013-04-30
Katkat- Member
- Posts : 20
Join date : 2013-04-18
Age : 43
Location : Australia
gorillagirl- Member
- Posts : 13
Join date : 2013-04-30
Re: Where are people from?
by Katkat Mon May 06, 2013 1:32 pm
Cool, we will see if there are any other adelaideans who may be keen!
Katkat- Member
- Posts : 20
Join date : 2013-04-18
Age : 43
Location : Australia
kimmieg33- Member
- Posts : 42
Join date : 2013-04-18
Age : 55
Location : Living in the moment
Re: Where are people from?
by Admin Fri May 10, 2013 11:12 pm
No this is fine, I can put in its own conversation thread
I'm from Surrey in the UK. Half hour outside London
I'm from Surrey in the UK. Half hour outside London
Admin- Admin
- Posts : 63
Join date : 2013-03-26
Age : 33
Location : UK -
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» Ear ache/Jaw pain - Anyone else?
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