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New to Group
Thu May 21, 2015 12:12 pm by leeG
HI All, thanks for letting me join, i was diagnosed two yrs ago, altho had symptoms for much longer and now wonder if the MCTD started in my 30s when i was diagnosed with chronic fatigue. now also have raynauds, hashimoto's, blepharitis (sp?), asthma, and multiple allergies, Plaquinel has amazing effects until i had a severe reaction, and now on Atabrine (quinacrine) but its not as effective. …
Comments: 0
New to group, New to disease
Tue Aug 26, 2014 5:58 am by MissDaisy
Hello,
I am a 36 year old female with 3 boys, ages 4-9, and I work as a 911 Dispatcher. I started having symptoms about 3 years ago starting with lumbar pain. I put it off for well over a year thinking it was just over-exertion. When I couldnt take the pain anymore as it was constant, and even just turning my head to the side caused severe pain. I got to the point that standing, sitting, and …
I am a 36 year old female with 3 boys, ages 4-9, and I work as a 911 Dispatcher. I started having symptoms about 3 years ago starting with lumbar pain. I put it off for well over a year thinking it was just over-exertion. When I couldnt take the pain anymore as it was constant, and even just turning my head to the side caused severe pain. I got to the point that standing, sitting, and …
Comments: 1
How much pain before accepting medication?
Fri Sep 19, 2014 9:46 pm by josephine landau
Hi - My names Jo, I'm 42.
I was diagnosed in January of this year with MCTD, after a year or so of growing symptoms (Reynaulds, aching joints etc) I am a working mum with 2 boys, so my days are fairly hectic.
I take B12 injections for fatigue, Levothyroxine for low thyroid and Tegretol for an epileptic seizure I had 10 years ago -So I was reluctant to add to my drugs list and I declined any …
I was diagnosed in January of this year with MCTD, after a year or so of growing symptoms (Reynaulds, aching joints etc) I am a working mum with 2 boys, so my days are fairly hectic.
I take B12 injections for fatigue, Levothyroxine for low thyroid and Tegretol for an epileptic seizure I had 10 years ago -So I was reluctant to add to my drugs list and I declined any …
Comments: 0
Not yet diagnosed teen from Finland
Thu Mar 27, 2014 6:12 am by finnishgirl
Hi everyone!
I was happily suprised when I found all this great stuff for us MCTD patients! And hope to get to know some people with this illness. Because there's not a lot of stuff for us in Finland.
I'm a 15-years-old girl from Finland. I still haven't got a diagnosis for MCTD, but my rheuma specialist has suggested it after many years of different tests. And it seems to be logical, I have …
I was happily suprised when I found all this great stuff for us MCTD patients! And hope to get to know some people with this illness. Because there's not a lot of stuff for us in Finland.
I'm a 15-years-old girl from Finland. I still haven't got a diagnosis for MCTD, but my rheuma specialist has suggested it after many years of different tests. And it seems to be logical, I have …
Comments: 0
Another Australian story
Fri Nov 29, 2013 9:50 am by Ozzie1954
First of all, it is so good to find a forum with people who have been going through the same issues. I was doing a search on earache/jaw pain which is afflicting me this morning and found this forum.
My story begins in 1987 but probably goes back a lot further because of other issues that surfaced in my teens. It started after I had a bout of the flu, went back to work where I was handling …
My story begins in 1987 but probably goes back a lot further because of other issues that surfaced in my teens. It started after I had a bout of the flu, went back to work where I was handling …
Comments: 1
New from California.
Fri Jul 26, 2013 10:28 pm by mollyingrid92
Hello! My name is Molly, 20 years old, California resident. At the beginning of the 2013 year I noticed I was having really bad knee pains that would last for a while. When I finally went to see my doctor, he moved my leg around to see how my knee was working. Then he did this weird on where he would put a hand flat on the side of my knee and with the other hand push on the opposite side of my …
Comments: 8
This is all new!
Thu Apr 18, 2013 2:35 am by Admin
Ive never run or created a forum before so there may be some bugs, please let me know as soon as possible so I can correct them! I hope you find it easy to use!
Admin
Admin
Comments: 9
Hi from Australia
Tue Apr 30, 2013 12:46 pm by gorillagirl
Hi everyone
A brief bio. Female, 45, Hashimoto's since young. Started with flare ups after activity, sore joints and muscles, feeling sick, bloods abnormal and high CRP and ESR, symptoms pointed to lupus. Doctor nightmare for some years, the usual, it's just your thyroid and you have fibro, maybe you have narcolepsy, others haven things worse than you blah blah blah.
Found a good GP, …
A brief bio. Female, 45, Hashimoto's since young. Started with flare ups after activity, sore joints and muscles, feeling sick, bloods abnormal and high CRP and ESR, symptoms pointed to lupus. Doctor nightmare for some years, the usual, it's just your thyroid and you have fibro, maybe you have narcolepsy, others haven things worse than you blah blah blah.
Found a good GP, …
Comments: 8
Newbie, new to the dx, but not to the symptoms
Tue Apr 30, 2013 2:20 pm by Lenorekitty75
Hello Everyone !
Just came across this site today. Which is odd because I've been googling MCTD for months now. It's nice to know there are others out there in the world who could relate to what has become my life. Although I have frequented lupus and MS boards over the last 9 yrs and had wonderful support.
I am Christina, 37...mum of 3 the youngest is 3 and the oldest is 14. The Dr's have …
Just came across this site today. Which is odd because I've been googling MCTD for months now. It's nice to know there are others out there in the world who could relate to what has become my life. Although I have frequented lupus and MS boards over the last 9 yrs and had wonderful support.
I am Christina, 37...mum of 3 the youngest is 3 and the oldest is 14. The Dr's have …
Comments: 4
Latest topics
Appointment with my Rheumy
2 posters
Appointment with my Rheumy
Hi guys,
Just had my 6 monthly check in with my rheumy.
some decent news...my ESR's have gone down from 60's to 30's. My ANA is still at 340, but when I was first diagnosed, they stopped 'titreing' at 2650, so it has come down quite a bit.
So all in all I'm pretty steady. Obviously she would prefer my ANA to be at about 160, but I'm pretty okay with it so far. We decided that the risks of increasing meds at this stage, while I'm not feeling too poorly, outweigh the potential benefits, so other than prescribing celebrex to replace the ibuprofen I have been taking, nothing else has changed.
The thing I really like about my Rheumy is she looks at the whole person- eg mood, exercise, life occurrences, and tries to help me find a balance throughout. And she gives me options, rather than telling me the way it is going to be. For all the Adelaideans, her name is Dr Geetha Chandran.
Just had my 6 monthly check in with my rheumy.
some decent news...my ESR's have gone down from 60's to 30's. My ANA is still at 340, but when I was first diagnosed, they stopped 'titreing' at 2650, so it has come down quite a bit.
So all in all I'm pretty steady. Obviously she would prefer my ANA to be at about 160, but I'm pretty okay with it so far. We decided that the risks of increasing meds at this stage, while I'm not feeling too poorly, outweigh the potential benefits, so other than prescribing celebrex to replace the ibuprofen I have been taking, nothing else has changed.
The thing I really like about my Rheumy is she looks at the whole person- eg mood, exercise, life occurrences, and tries to help me find a balance throughout. And she gives me options, rather than telling me the way it is going to be. For all the Adelaideans, her name is Dr Geetha Chandran.
Katkat- Member
- Posts : 20
Join date : 2013-04-18
Age : 43
Location : Australia
Re: Appointment with my Rheumy
Where is she based in Adelaide? I've just started with the Rheum department at the Royal hospital. Have another appointment tomorrow so keep fingers crossed for antibodies, he ordered everything there was. I'm a bit worried I haven't been off the pred for long enough to have something show up. I've had two negative ANAs before so really need an indicator other than other blood work and symptoms.
gorillagirl- Member
- Posts : 13
Join date : 2013-04-30
Re: Appointment with my Rheumy
gorillagirl wrote:Where is she based in Adelaide? I've just started with the Rheum department at the Royal hospital. Have another appointment tomorrow so keep fingers crossed for antibodies, he ordered everything there was. I'm a bit worried I haven't been off the pred for long enough to have something show up. I've had two negative ANAs before so really need an indicator other than other blood work and symptoms.
She is in North Adelaide hun, close to Café Palazzo. She is private, but going 6 monthly, makes it affordable still
Katkat- Member
- Posts : 20
Join date : 2013-04-18
Age : 43
Location : Australia
Re: Appointment with my Rheumy
If I were staying here I'd definitely see if she could see me. So hard to find decent doctors.
gorillagirl- Member
- Posts : 13
Join date : 2013-04-30
Re: Appointment with my Rheumy
It is, I agree. I was quite lucky really in that my GP referred me straight on to her. My first real symptom was TMJ pain/jaw locking. I had gone to different GP's over the years, who said it was wisdom teeth, sometimes people just got it, and to press my jaw when I ate to stop it clicking! When I saw this GP, he straight away sent me for bloods, and as soon as the ANA came back at 2650, he referred me straight on to Dr Chandran.
Katkat- Member
- Posts : 20
Join date : 2013-04-18
Age : 43
Location : Australia
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Thu May 21, 2015 12:12 pm by leeG
» Flare up PLEASE help!
Sat Feb 21, 2015 1:48 pm by aceequine7
» Help with getting a doctor to understand...
Fri Oct 31, 2014 6:16 am by nancehg
» Pain management/plaquenil vision issues
Fri Oct 31, 2014 5:49 am by nancehg
» New to group, New to disease
Fri Oct 31, 2014 5:37 am by nancehg
» Ear ache/Jaw pain - Anyone else?
Sat Oct 11, 2014 8:39 pm by finnishgirl
» How much pain before accepting medication?
Fri Sep 19, 2014 9:46 pm by josephine landau
» Burning sensation and peeling of skin on hands and feet
Fri Jun 13, 2014 4:41 am by Andazi
» Heartburn & reflux
Sun May 25, 2014 8:49 pm by finnishgirl