Paranoid about Pulmonary Hypertension. Who can make me feel better?

Does anyone know how prevalent pulmonary hypertension is with mctd? I started reading about it and had to stop because it freaked me out. I can't get it off my mind now and I know I shouldn't continue to pick Dr. Google's brain. I have read over and over again that those with mctd are at an increased risk, but haven't seen what % of mctd sufferers actually get pulmonary hypertension.

My brain is in overdrive. Again.

Dr Google can really freak me out as well. As for me I'm trying my best to develop and keep healthy habits. It's funny you posted this, I just got through watching a video on you tube where the doc mentioned mctd and increased risk of heart problems later. He suggested fish oil.
Sure will be nice as this forum grows to hear more people share their experience. Such a very strange disease

Hi StacieicatS,
I suffered from a virus over my heart about 2 years ago. Very similar symptoms to a heart attack. SCARIEST moment of my life. This was related to MCTD, BUT as with all symptoms & offshoot problems with MCTD, you just got to not worry about it until it's time to worry because if you do you'll litterally worry yourself to an early grave! I was like this when first diagnosed & it made me more sick. I was in bed for a week & it was sunny outside, I was looking out of the window thinking 'I could be out there playing with the dog or sunbathing or having drinks with friends & instead I'm here sick', I know that we get sick from this illness a lot but I made myself sick with worry. Something had t change. I've found positivity has been the best medicine. I try not to think of it.
I have read everything there is to read on MCTD considering I need to research a lot of stuff for the organization etc & this stuff scares me & freaks me out too, however I have learnt that a lot of stuff on Google isn't always correct.
But the statistics are in our favour: only 13% of people with MCTD go on to develop potentially fatal complications 6-12 years after diagnosis.
So I know it is difficult but instead of worrying, embrace your life & try to stay positive. Take this as you have to live your life doing everything in life you've always wanted to do. Have fun. Stay positive.
& remember the point of this organization is for us to 'pick you up' when you feel like this.

A visit to the pulmonologist this week showed that my lung diffusion is dropping incrementally, he suggested pulmonary hypertension as a possible cause. Next stop an echocardiogram, then if that's ok, a respiratory treadmill test. I'm glad you wrote about Dr. Google, as I will now NOT go that route, have also done that myself tooooo many times and it never ends well. I'll try to remember to check back in here and report in with the results when my tests are done. Echo is scheduled in 3 weeks.