Mixed Connective Tissue Disease Awarenes
Hello and welcome to the MCTDA forum!
This is a forum for MCTD sufferers, the first of its kind! (to my knowledge).
To be part of our community please click on the register button below.
If you are already a member please login.
For more information on Mixed Connective Tissue Disease, check out the website:
Please note: this is the first time I have created a forum so if there are any bugs please report them asap so I can fix them. Contact me via email:
I hope you find the help, support and information you need and I wish you to be happy and flare free :-)
Abigail -
Creator of MCTDA

Display results as :

Rechercher Advanced Search

New to Group

Thu May 21, 2015 12:12 pm by leeG

HI All, thanks for letting me join, i was diagnosed two yrs ago, altho had symptoms for much longer and now wonder if the MCTD started in my 30s when i was diagnosed with chronic fatigue. now also have raynauds, hashimoto's, blepharitis (sp?), asthma, and multiple allergies, Plaquinel has amazing effects until i had a severe reaction, and now on Atabrine (quinacrine) but its not as effective. …

Comments: 0

New to group, New to disease

Tue Aug 26, 2014 5:58 am by MissDaisy

I am a 36 year old female with 3 boys, ages 4-9, and I work as a 911 Dispatcher. I started having symptoms about 3 years ago starting with lumbar pain. I put it off for well over a year thinking it was just over-exertion. When I couldnt take the pain anymore as it was constant, and even just turning my head to the side caused severe pain. I got to the point that standing, sitting, and …

Comments: 1

How much pain before accepting medication?

Fri Sep 19, 2014 9:46 pm by josephine landau

Hi - My names Jo, I'm 42.
I was diagnosed in January of this year with MCTD, after a year or so of growing symptoms (Reynaulds, aching joints etc) I am a working mum with 2 boys, so my days are fairly hectic.
I take B12 injections for fatigue, Levothyroxine for low thyroid and Tegretol for an epileptic seizure I had 10 years ago -So I was reluctant to add to my drugs list and I declined any …

Comments: 0

Not yet diagnosed teen from Finland

Thu Mar 27, 2014 6:12 am by finnishgirl

Hi everyone!

I was happily suprised when I found all this great stuff for us MCTD patients! And hope to get to know some people with this illness. Because there's not a lot of stuff for us in Finland.

I'm a 15-years-old girl from Finland. I still haven't got a diagnosis for MCTD, but my rheuma specialist has suggested it after many years of different tests. And it seems to be logical, I have …

Comments: 0

Another Australian story

Fri Nov 29, 2013 9:50 am by Ozzie1954

First of all, it is so good to find a forum with people who have been going through the same issues. I was doing a search on earache/jaw pain which is afflicting me this morning and found this forum.

My story begins in 1987 but probably goes back a lot further because of other issues that surfaced in my teens. It started after I had a bout of the flu, went back to work where I was handling …

Comments: 1

New from California.

Fri Jul 26, 2013 10:28 pm by mollyingrid92

Hello! My name is Molly, 20 years old, California resident. At the beginning of the 2013 year I noticed I was having really bad knee pains that would last for a while. When I finally went to see my doctor, he moved my leg around to see how my knee was working. Then he did this weird on where he would put a hand flat on the side of my knee and with the other hand push on the opposite side of my …

Comments: 8

This is all new!

Thu Apr 18, 2013 2:35 am by Admin

Ive never run or created a forum before so there may be some bugs, please let me know as soon as possible so I can correct them! I hope you find it easy to use!
Admin Very Happy

Comments: 9

Hi from Australia

Tue Apr 30, 2013 12:46 pm by gorillagirl

Hi everyone Very Happy

A brief bio. Female, 45, Hashimoto's since young. Started with flare ups after activity, sore joints and muscles, feeling sick, bloods abnormal and high CRP and ESR, symptoms pointed to lupus. Doctor nightmare for some years, the usual, it's just your thyroid and you have fibro, maybe you have narcolepsy, others haven things worse than you blah blah blah.

Found a good GP, …

Comments: 8

Newbie, new to the dx, but not to the symptoms

Tue Apr 30, 2013 2:20 pm by Lenorekitty75

Hello Everyone ! Smile

Just came across this site today. Which is odd because I've been googling MCTD for months now. It's nice to know there are others out there in the world who could relate to what has become my life. Although I have frequented lupus and MS boards over the last 9 yrs and had wonderful support.

I am Christina, 37...mum of 3 the youngest is 3 and the oldest is 14. The Dr's have …

Comments: 4

June 2019

Calendar Calendar

Latest topics
» New to Group
New symptoms EmptyThu May 21, 2015 12:12 pm by leeG

» Flare up PLEASE help!
New symptoms EmptySat Feb 21, 2015 1:48 pm by aceequine7

» Help with getting a doctor to understand...
New symptoms EmptyFri Oct 31, 2014 6:16 am by nancehg

» Pain management/plaquenil vision issues
New symptoms EmptyFri Oct 31, 2014 5:49 am by nancehg

» New to group, New to disease
New symptoms EmptyFri Oct 31, 2014 5:37 am by nancehg

» Ear ache/Jaw pain - Anyone else?
New symptoms EmptySat Oct 11, 2014 8:39 pm by finnishgirl

» How much pain before accepting medication?
New symptoms EmptyFri Sep 19, 2014 9:46 pm by josephine landau

» Burning sensation and peeling of skin on hands and feet
New symptoms EmptyFri Jun 13, 2014 4:41 am by Andazi

» Heartburn & reflux
New symptoms EmptySun May 25, 2014 8:49 pm by finnishgirl


New symptoms Empty

New symptoms

Go down

New symptoms Empty New symptoms

Post by JoanneVT on Fri May 31, 2013 7:04 pm

I woke with a lovely butterfly rash, on my face and also on my neck for the first time. I guess that the Lupus is making itself known. No wonder I've been feeling like crap. Damn. I have MCTD and thought I had a few more years till this would be symptomatic.
I have had two previous flares that were more like RA blow ups but never this rash.
Should I let my Rhumi know or not? I've been on plaquenil and prednisone for years anticipating already. Is there anything I need to do?
Thanks for your insight. Love & Light. Embarassed


Posts : 4
Join date : 2013-05-25

Back to top Go down

New symptoms Empty Re: New symptoms

Post by kimmieg33 on Mon Jun 03, 2013 2:17 pm

I try to keep a list and let my docs know. I'm still not sure about my rheumy, we shall see. it was only after writing a list of every strange thingthat had been happeningto me for years that my primary care doc was able to start the ball rolling and figure things out.
I always avoid the sun when having skin issues.

"In the depth of winter, I finally learned that within me there lay an invincible summer"

Albert Camus~

Posts : 42
Join date : 2013-04-18
Age : 50
Location : Living in the moment

Back to top Go down

New symptoms Empty Re: New symptoms

Post by JoanneVT on Mon Jun 03, 2013 4:10 pm

Thanks for the idea of actually writing down a list, kimmieg33.
I called my rheumatologist and my primary care doc later that morning.
The primary care doc called me back after hours (7:30PM) and by then I was so sick with fever and pain he actually made a house call. Shocked
He said yup, it's Lupus, and raised my prednisone to 20mg.
The rhuematologist called the next morning at 7:30AM and said that he agreed with the diagnosis but can't see me for a few weeks. Mad
In the meantime, I still have the rash, it's fading, but the joint pain and fever is GONE.
I also downloaded some books and ordered some UV protecting tops from Amazon. I guess now all I can do is grin and bear it. Smile
Thanks again for caring.
Time for bed. Sleep


Posts : 4
Join date : 2013-05-25

Back to top Go down

New symptoms Empty Re: New symptoms

Post by kimmieg33 on Mon Jun 03, 2013 5:49 pm

the prednisone helped tremendously with the pain. I am currently trying to taper off. I have a love hate relationship with it I love you Evil or Very Mad
speaking of bedtime, how the he#! am I still awake with all the sleep meds on board Exclamation
I've got to get up in 4 hours, my body is going to be pissed tomorrow.
sleep well

"In the depth of winter, I finally learned that within me there lay an invincible summer"

Albert Camus~

Posts : 42
Join date : 2013-04-18
Age : 50
Location : Living in the moment

Back to top Go down

New symptoms Empty Re: New symptoms

Post by Sponsored content

Sponsored content

Back to top Go down

Back to top

Permissions in this forum:
You cannot reply to topics in this forum