Mixed Connective Tissue Disease Awarenes
Hello and welcome to the MCTDA forum!
This is a forum for MCTD sufferers, the first of its kind! (to my knowledge).
To be part of our community please click on the register button below.
If you are already a member please login.
For more information on Mixed Connective Tissue Disease, check out the website:
www.mctdaware.co.uk
Please note: this is the first time I have created a forum so if there are any bugs please report them asap so I can fix them. Contact me via email:
mctda@hotmail.co.uk
I hope you find the help, support and information you need and I wish you to be happy and flare free :-)
Abigail -
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New to Group

Thu May 21, 2015 12:12 pm by leeG

HI All, thanks for letting me join, i was diagnosed two yrs ago, altho had symptoms for much longer and now wonder if the MCTD started in my 30s when i was diagnosed with chronic fatigue. now also have raynauds, hashimoto's, blepharitis (sp?), asthma, and multiple allergies, Plaquinel has amazing effects until i had a severe reaction, and now on Atabrine (quinacrine) but its not as effective. …

Comments: 0

New to group, New to disease

Tue Aug 26, 2014 5:58 am by MissDaisy

Hello,
I am a 36 year old female with 3 boys, ages 4-9, and I work as a 911 Dispatcher. I started having symptoms about 3 years ago starting with lumbar pain. I put it off for well over a year thinking it was just over-exertion. When I couldnt take the pain anymore as it was constant, and even just turning my head to the side caused severe pain. I got to the point that standing, sitting, and …

Comments: 1

How much pain before accepting medication?

Fri Sep 19, 2014 9:46 pm by josephine landau

Hi - My names Jo, I'm 42.
I was diagnosed in January of this year with MCTD, after a year or so of growing symptoms (Reynaulds, aching joints etc) I am a working mum with 2 boys, so my days are fairly hectic.
I take B12 injections for fatigue, Levothyroxine for low thyroid and Tegretol for an epileptic seizure I had 10 years ago -So I was reluctant to add to my drugs list and I declined any …

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Not yet diagnosed teen from Finland

Thu Mar 27, 2014 6:12 am by finnishgirl

Hi everyone!

I was happily suprised when I found all this great stuff for us MCTD patients! And hope to get to know some people with this illness. Because there's not a lot of stuff for us in Finland.

I'm a 15-years-old girl from Finland. I still haven't got a diagnosis for MCTD, but my rheuma specialist has suggested it after many years of different tests. And it seems to be logical, I have …

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Another Australian story

Fri Nov 29, 2013 9:50 am by Ozzie1954

First of all, it is so good to find a forum with people who have been going through the same issues. I was doing a search on earache/jaw pain which is afflicting me this morning and found this forum.

My story begins in 1987 but probably goes back a lot further because of other issues that surfaced in my teens. It started after I had a bout of the flu, went back to work where I was handling …

Comments: 1

New from California.

Fri Jul 26, 2013 10:28 pm by mollyingrid92

Hello! My name is Molly, 20 years old, California resident. At the beginning of the 2013 year I noticed I was having really bad knee pains that would last for a while. When I finally went to see my doctor, he moved my leg around to see how my knee was working. Then he did this weird on where he would put a hand flat on the side of my knee and with the other hand push on the opposite side of my …

Comments: 8

This is all new!

Thu Apr 18, 2013 2:35 am by Admin

Ive never run or created a forum before so there may be some bugs, please let me know as soon as possible so I can correct them! I hope you find it easy to use!
Admin Very Happy

Comments: 9

Hi from Australia

Tue Apr 30, 2013 12:46 pm by gorillagirl

Hi everyone Very Happy

A brief bio. Female, 45, Hashimoto's since young. Started with flare ups after activity, sore joints and muscles, feeling sick, bloods abnormal and high CRP and ESR, symptoms pointed to lupus. Doctor nightmare for some years, the usual, it's just your thyroid and you have fibro, maybe you have narcolepsy, others haven things worse than you blah blah blah.

Found a good GP, …

Comments: 8

Newbie, new to the dx, but not to the symptoms

Tue Apr 30, 2013 2:20 pm by Lenorekitty75

Hello Everyone ! Smile

Just came across this site today. Which is odd because I've been googling MCTD for months now. It's nice to know there are others out there in the world who could relate to what has become my life. Although I have frequented lupus and MS boards over the last 9 yrs and had wonderful support.

I am Christina, 37...mum of 3 the youngest is 3 and the oldest is 14. The Dr's have …

Comments: 4

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Latest topics
» New to Group
Thu May 21, 2015 12:12 pm by leeG

» Flare up PLEASE help!
Sat Feb 21, 2015 1:48 pm by aceequine7

» Help with getting a doctor to understand...
Fri Oct 31, 2014 6:16 am by nancehg

» Pain management/plaquenil vision issues
Fri Oct 31, 2014 5:49 am by nancehg

» New to group, New to disease
Fri Oct 31, 2014 5:37 am by nancehg

» Ear ache/Jaw pain - Anyone else?
Sat Oct 11, 2014 8:39 pm by finnishgirl

» How much pain before accepting medication?
Fri Sep 19, 2014 9:46 pm by josephine landau

» Burning sensation and peeling of skin on hands and feet
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Anyone else have sore teeth after methotrexate?

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Anyone else have sore teeth after methotrexate?

Post by Laney84 on Fri May 03, 2013 8:31 pm

Hey all,
Just wondering if anyone else gets sore teeth after methotrexate day? I woke up this morning with a swollen sore jaw on one side, and my tragus piercing (10 years old!) has gotten all swollen and infected on the other side! Hahaha that along with my crippling back pain would actually drive anyone to drink....... even though I cant even drink much hahaha! Mad Seriously sometimes with this disease I think we get thrown one thing after another, and it just aint fair! Anyone else have any hair loss? I used to have lovely long thick curly hair thankfully, as I have lost so much of it over the last 2/5 years it is so so scary. I try not to stress about it but I miss my lovely hair, shallow I know! Also eye/ear/mouth/nose/other area dryness?????? Thanks x

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Re: Anyone else have sore teeth after methotrexate?

Post by Admin on Sat May 04, 2013 1:49 am

Hi Laney84,
Ahh these are the lovely bodily functions of an MCTD sufferer! affraid
I have been getting toothache aswell & wasn't sure if there was a connection with that to MCTD, however I never thought there might be a connection with MTX. Maybe you have an absess in your face which is why it's swollen?
I suffer a little bit of hair loss too. Not much can be done about that unfortunately. No
You're not shallow! Why should you lose your hair to this damned disease! Mad
I got stretch marks on my beautiful legs after a steroid infusion, I was so depressed & people thought I was being shallow & said they have stretch marks rom having children. I said yeah great, at least you have a beautiful child from it, I got nothing, the infusion didn't even work! So tell me how that's fair!?
Dont worry I understand. You need to see a DR about the swelling or at least the dentist.

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Re: Anyone else have sore teeth after methotrexate?

Post by Laney84 on Sat May 04, 2013 3:24 am

Thanks for the reply,
I deffo think teeth problems are related to being on immunosuppressents for a long periods of time! just another thing to add to the list. omfg your stretch marks on your legs have just reminded me of my big huge (2 inch+) dent/hole in my lower back (right side) the stupid nurse gave me a double shot of steroids (2 high for 1 area and the dumb female dog injected me in the wrong area..........) i have it 2 years now and has not gotten better, went back to the consultant and he was such a prick about it.... ggggrrrrrrr it makes me so angry i have to try not and think about it, i am deformed for life because of their stupidity! lucky i like high waisted bikinis affraid sorry for cursing, if it offends anyone but i am irish and it tends to slip out often..... and i am not sorry really! hahaha thanks for the reply! also have you tried biooil for the stretch marks? i tried it for like 4-5 months.... made the hole nice and shiney but thats about it! Very Happy

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Re: Anyone else have sore teeth after methotrexate?

Post by Laney84 on Sat May 04, 2013 3:25 am

hahahaha omfg it changed the word beeaattchh into femal dog how funny! Very Happy

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Re: Anyone else have sore teeth after methotrexate?

Post by kimmieg33 on Sat May 04, 2013 6:26 am

lol!

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Re: Anyone else have sore teeth after methotrexate?

Post by Admin on Sat May 04, 2013 7:43 am

lol! lol! lol! lol!
I was literally wetting myself with laughter at these post replies! I changed a lot of the swear words for a more polite version just for giggles. So a few suprises haha.
Don't worry about your cursing! I'm from south London & my dads ex army so I can have my poison mouth when I want. Twisted Evil
I can't believe that about the hole in the back!!!?? That is so bad!! Arseholes!
I made a complaint about my stretch marks & the DR went 'oh yeah that might be a side affect' AFTER I'd had it! I was like jeex thanks for telling me! They can be useless sometimes Rolling Eyes I suppose we just gotta focus on the good DRs.
As to Bio oil - I thought it was poop! Mad

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Re: Anyone else have sore teeth after methotrexate?

Post by Admin on Sat May 04, 2013 7:44 am

Apprently I forgot about arseholes though as a swear word lol!

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Re: Anyone else have sore teeth after methotrexate?

Post by Laney84 on Sat May 04, 2013 8:25 pm

hahaha yea complaining over here does not really seem to have any effect does it! i had such a horrid time with the nhs i try and avoid them, got all my proper diagnosis in ireland, i didnt expect the nhs to be so poor but it is really shocking. haha i love the changing curse words good idea haha i know for a fact some americans dont like cursing as i was in r.a forums and other autoimmune forums before this and had a few scoldings haha! each one to there own and all that jazz! what course are you planning on doing?

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Re: Anyone else have sore teeth after methotrexate?

Post by Katkat on Mon May 06, 2013 12:44 pm

Haha this is hilarious! I feel like putting a ton of swear words on just to see what it changes it to!

I have been to the dentist a few times for what I thought was gum problems. Turns out I have been grinding my teeth hard, but I cant wear my mouth guard because my TMJ pain flares! I also get mouth ulcers due to the methotrexate. My rheumy suggested doubling my folic acid during those times. I just find im really wiped out every Sunday (I take methotrexate Saturday night)
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Re: Anyone else have sore teeth after methotrexate?

Post by Katkat on Mon May 06, 2013 12:44 pm

haha yes those two words at the end was me testing! Razz
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Re: Anyone else have sore teeth after methotrexate?

Post by Laney84 on Mon May 06, 2013 7:05 pm

hahaha poop female dog indeed haha! yea i take my folic acid every day bar inj day and i find it helps as i used to get horrid migranes and stuff and mouth ulcers also.......... but then again at the time i was on full whack tramadol, and oxynorm and oramorph at night so i was in a bad way with other side effects haha! off all them now thankfully it was hard to come off but had to be done i was like a zombie for over a year!

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Re: Anyone else have sore teeth after methotrexate?

Post by Admin on Fri May 10, 2013 11:45 pm

I've never really had any side affects with MTX (lucky me) but I know others have had severe side affects. I heard increasing the folic acid dosage helps too.
The NHS is pretty crap. I don't know why I even put up with it most of the time. Oh right yeah because there's no other option lol!
My teeth hurt all the time but I don't really get ulcers, when I asked the dentist he said the tendons etc. in my jaws & gums were flaring like in my body!
Not so sure about this.....
my gums bleed a lot too with no cause, I have healthy teeth. anyone else get this?

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Re: Anyone else have sore teeth after methotrexate?

Post by Laney84 on Tue May 21, 2013 6:17 am

sorry for the delay i had my dissertation and revision then exams! free now affraid haha teeth wise yea mine always always bleed! never before the methotrexate! wow you are lucky with the no side effects the tablets were horrid for me! and as for the nhs i have had another run in with them! so glad to be irish!

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Re: Anyone else have sore teeth after methotrexate?

Post by Laney84 on Tue May 21, 2013 6:18 am

hi kat kat, hows the extra folic acid working?

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Re: Anyone else have sore teeth after methotrexate?

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